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Old Wed Nov 16, 2016, 10:48 AM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Welcome to the forum. There are many different stories and you have good questions. For me I had a routine CBC when "out of the blue" I had a kidney stone attack. Among my counts on that CBC were Plts @ 48, RBCs @ 3.75, WBCs@ 4.7 and HGB @ 12.6.
Immediately I had two bone marrow biopsies within a week that showed three genetic mutations. I was diagnosed with MDS (RAEB-II) after the second BMB. The strange thing was that I felt totally normal. I have to credit my doctors who acted promptly to start me on Vidaza with the intention of getting a stem cell transplant as soon as counts got back to normal range.

Some people can go for years with MDS. It just depends on which of many types of MDS affect a person. For me, time was of the essence. My situation was very fluid and I didn't have any time to wait around. Realize that the more information you have, the better you can handle the situation. Don't get caught up in ignoring what is taking place. Organize your results so you can make easy comparisons to identify trends. Don't just stack up these results in a pile of papers.

We wish you the very best and feel free to ask questions.
p.s. I have had 18 bone marrow biopsies.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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