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Old Tue Dec 12, 2017, 11:45 PM
Sarah W Sarah W is offline
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Join Date: Sep 2013
Location: Kansas City
Posts: 5
Also trisomy 8

Ashleigh, I don't know if you're still around here, but just wanted to reply that I also have trisomy 8. I definitely have PNH for sure, but was just diagnosed last month before the results of my bone marrow biopsy came back. With my biopsy there ARE some signs of AA, but at worst its moderate AA. Not sure if my hematologist will also add moderate AA to my diagnosis. We'll see after my next appointment. My hematologist is not an expert in AA/PNH, but he saw a few bone marrow failure patients when he lived in a different state.
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Diagnosed with PNH and Megakaryocytic Hypoplasia Nov 2017. Cytogenic abnormality: Trisomy 8 at 4.2%. Starting Soliris Jan 2017. Latest CBC: WBC 3.05 (4-11), Hemoglobin 8.5 (12-15), Platelets 28 (140-400).
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