Well said, Marlene! I totally agree with you. We can do a lot to help ourselves stay well in spite of MDS, and to perhaps help to mitigate some of the effects of therapies like chemo.
Quester - You are wise to consider the chemo regime carefully. Only you can know how you cope with strong drugs and there is no doubt that the side effects of Vidaza can be debilitating for some. See http://chemocare.com/chemotherapy/drug-info/Vidaza.aspx It's a regime which will change your daily lifestyle as you are no doubt discovering. For me chemo or a transplant will only be considered if my blast count increases significantly again.
I know you said your CBC results are low. How low? Do you have any blasts? It's important to monitor your own results carefully. Some of us record them in a spread-sheet.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Last edited by Cheryl C : Wed Sep 30, 2015 at 07:36 PM.
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