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Old Sun Nov 20, 2016, 06:37 PM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
My diagnosis was RAEB-II with 19 percent blasts and three mutations. They told me in pretty clear terms that if I didn't start the Vidaza immediately there would be a good chance I wouldn't live very long (months). I responded to the Vidaza by the second cycle. They immediately started looking for SCT donors. It is very important to do the stem cell transplant in optimum health.

I was told and read several times that there isn't a hereditary factor. Could be an environmental connection. Or maybe they don't know for sure. I have a good friend right now who has MDS and his brother also had it.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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