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Hi Hope - If you are going to do an iron chelator Jadenu seems like a better version - so I'd talk to your doctor about trying that instead of Exjade. The drug is listed as a contraindicated for High Risk MDS, although I'm not sure why. I was originally diagnosed with Low Risk but as things progressed my transplant doctor described me as being High Risk - this surprised me and I asked my hematologistand we settled on "kinda risky MDS" - so I'm not really sure the basis for the contraindication. Lower iron is definitely better for transplant and also better for you heart, but they did not want to delay my transplant for iron chelation. You might also try contacting someone at Novartis. Some of the listed side effects are quite scary but I didn't have a problem with it - I only took it for three or four weeks. My doctors seemed somewhat ambivalent about it. Good luck
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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