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John doesn't have hemachomatosis but we were told that if you have it, it may not show up til later in life.
Even after you get your FE down from phlebotomies, I think your body will still pull iron that's stored in your organs and bind to the circulating FE protein like it's supposed to do. Which means you may see your FE rise after you thought you got it all out. This is just my opinion though.
It's good they're doing the gene testing.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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