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Old Wed Jun 10, 2009, 12:26 PM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Welcome to the site! I had SAA the first time around when I was 5 and if it makes you feel any better, I really don't remember much about those times, only snippets of fun things, like getting IVs and masks for my stuffed animals, showing my hospital friends my IVs in both hands, watching "Mr. Mom" in the hospital playroom, and the time a red blood bag burst over us while we played Atari in the hospital games room. I really don't remember the painful procedures at all, though I know they must've happened, and if your son/daughter is anything like me, they'll come out of this with a superpower for needles (as in, they don't bother me in the slightest)! I had all my treatment at Hershey Medical Centre and CHOP in Philadelphia back in 1984.

I don't know anything about BMT for kids as I had ATG back then, but there's lots of helpful people here so I'm sure someone can help.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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