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Old Wed Feb 7, 2018, 10:44 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John couldn't tolerate a full dose of Exjade. His approach was to start at a low dose of 250 mg/day and he worked up to 750 mg/day. He never got to a full dose. He would take a break from the drug for about a week every 3 or 4 weeks and start it up again. His biggest complaint was nausea. He finally reached a point where his kidneys didn't like it so he stopped completely. Fortunately, he was at a point where his HGB was holding at 11 and they would do therapeutic phlebotomies every other month.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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