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? Have you been tested for hypogammaglobulinaemia?
Re your fevers, have your immunoglobulin levels been tested? I am feeling so much better since being treated with Intragam (gamma globulin) which has built up my immune system - I no longer get night fevers/sweats. A lot of my unwell feelings were due to underlying unknown infections. I feel so much better now even though I have MDS RAEB2.
Hope your search for knowledge and appropriate treatment succeeds.
I found the American Cancer Society booklet most helpful in teaching me more about MDS. See http://www.cancer.org/myelodysplasti...iewguide/index
Cheryl
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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