Hi Catherine.
Well, that's good that you've got a firm diagnosis now! In general, if your counts are fine and you don't require transfusions, then "watch and wait" really does sound like the best approach. They'll keep a close eye on you, and if things get worse, they'll know right away and you can take a view then.
You're young now, yes, but remember that treatments are getting safer and more effective with every single year, so if it does turn out that you need a BMT in five years' time, it may be an entirely routine procedure then instead of the very invasive, rather risky, months-long ordeal it is now... Look on the bright side - you've got breathing room now to research and decide and have babies and LIVE LIFE instead of being forced to choose based on rapid deterioration. You're very lucky in a lot of ways!
melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)