Thank you girls for your information, I still seek more from ppl who have used it. More input please.
I get my Desferal through my port-a-cath. I was transfusion dependent approx. every 6 weeks. I haven't had a transfusion since 11/4/07 (knock on wood). That last one brought my hgb up to 9.8. I was at 9.2 when I started the Revlimid on 12/1/07. It went down to an 8 before it started to slowly rise again. On 1/21/08 I had a high of 10.2, and then it slowly trickled down to 9. I've been holding a 9 for 3 weeks. I have a Dr. appt on Monday, and see what he says about the Revlimid.
Right now my Iron is my main concern, I was recommended for a BMT 2 years ago, but I have 2 lil boys who need me & Im scared to death. I have no related matches and they have to use the registry. So, in the mean time I've been trying to buy myself time.
They called my Dx MDS in 2005, It was originally called Refractory Anemia with Ringed Sideroblasts back in 1999. I am 37 this year.
I know I need to make a signature line
