Hi there,
A friend of mine recommended this website the other day. I was diagnosed with PNH 3 years ago. My blood results say that I'm at 45% PNH, but my marrow isn't showing very many PNH cells. I also have aplastic anemia and it seems that my energy levels are really effected by low platelets, RBC's and Hemoglobin...not necessarily the spread of the disease. I'm just hoping to find someone out there who has been dealing with this condition as well, and maybe even someone who can recommend a good Dr. in my area. Thank you! Its comforting to know that there are others out there
Bree