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Thanks for responding. I must have missed something in my conversation with my hematologist, because my post really doesn't make sense!! I am just so overwhelmed with all of this. Sometimes I feel like I cannot absorb everything I hear in my appointments. I meet with him again next week, so hopefully I will get some answers. This disease is so frustrating!
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Erin 38, AA diagnosed Sept 2008. Atg Nov 08, relapse Nov 10. pnh 12/12. 40% pnh clone. Currently on Soliris.
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