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Iron overload
Hi everyone! I was just diagnosed with cardiac and liver iron overload, despite having had only about 10 transfusions, and a ferritin of only 550 or so. I had a cardiac MRI, which apparently is the gold standard. I already have significant CHF; ICD as well, so it is concerning. I know it is very unusual with a ferritin that low. They do want to treat me with a chelating agent, I forget which drug. I think it has significant GI side effects. They are sending me to some sub specialist cardiologist. So I was hoping some of you kind folk out there could share your experience. Thanks in advance.
Margaret
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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