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Old Wed Feb 22, 2017, 07:17 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi AddyGGs Mum - I had chronic idiopathic neutropenia for many years before my MDS diagnosis. Regarding the frequent infections, have your daughter's globulin levels been checked? If these are low (hypogammaglobulinemia) she may be able to have intravenous immunoglobulins which, while they won't fix her neutropenia could help her fight infections more successfully. That is my experience. BTW, re your other post, when I have an infection my white cells and neutrophils sometimes jump hugely as well, and my GP and haematologist view this as a positive. At least the marrow is responding.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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