Thread: New Member Welcome
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  #102  
Old Fri Feb 1, 2013, 11:53 AM
triumphe64 triumphe64 is offline
Member
  
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Have you talked to Leigh Clark at AAMDS?

She knows all the resources.
Call (800) 747-2820 press option 1 or email help@aamds.org
or clark@aamds.org
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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