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Old Sun Mar 23, 2014, 11:50 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
So this was my first 5k and first hope steps and a cure (I volunteered at the bethematch walk run) if you haven't been I strongly reccomend! It was such an amazing experience of comradery, true hope and the most determined group of people I have ever met. I saw a woman about to have a transplant running!
Anyway weather it's volunteering, running, walking, or even signing up the littles for tot trot its a fun way to give back to an organization that has given a lot to many of us
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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