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NEWBIE: 25, refractory AA, on track for BMT
Hello! I am new to this site. I was diagnosed with AA in 2009 and treated with ATG and cyclosporine. It took seven months to recover and I lived a normal life, transfusion free, for four years. The AA returned in 2013 and I repeated ATG and cyclosporine. Unfortunately it hasn't worked this time. I am now on track for a BMT.
I'm curious to know your thoughts on the eltrombopag (promacta) clinical trial at NIH. I want the BMT, as it is a proven treatment method, whereas the clinical trial is still in experimental phases. I know promacta has worked for many patients, but in all candor, I'm ready to be done with this phase of my life and do not want to wait any longer. I feel that I'm making the best decision for myself, as confirmed by my doctor at UCLA, but I just want to know your thoughts.
Thanks!
---Chrissy
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Chrissy; age 25; diagnosed AA in 2009; treated with ATG (horse) in 2009; refractory in 2013 with repeat ATG (horse); currently on cyclosporine; going in for BMT soon.
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