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Helen if it were I, and it is not, I would insist on seeing Dr. Alan List at Moffitt. From my research, he is the preeminant MDS doctor there. He is also one of the doctors that did the research&development of Revlimid as I understand. I am sure there are other very good doctors there as well.
I currently go to the West Palm Beach VA Hospital, but if the going gets real rough and I don't think they are handling the situation right, I'm heading for Moffitt.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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