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Old Sat Dec 28, 2013, 11:34 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
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Quote:
Originally Posted by Heather8773 View Post
My husband and I were told this and were hopeful that he would do well but he had no response w ATG. O well everything happens as it should and I guess he just wasn't one of those ppl it worked for. We were also told ATG could raise his PNH clone and it did. About 10 pts. From 18 to 28. But I'm happy you shared this bc it is true for many.
Heather,
Plan to attend the Hope Step and a Cure walk on March 22 in Houston. Details will be posted after the first of the year on the AAMDS web site and on Marrowforums. There will be many patients there.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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