Hi mm031...
As you become more familiar with your mom's MDS condition, you'll find it to be quite unique. Nevertheless, we members here - both patients and caregivers - have had a lot of experience in dealing with the "rollercoaster effect" of this complex nasty disease.
If her specialist agrees that a 'watch and wait' approach is best, don't be discouraged. There is still much hope to carry on the fight for many more good days, months, and even years yet to come.
I can only speak for myself and my life since my confirmed MDS dx in early 2008. I've chosen the route of PRBC transfusions and Exjade cheleation. To date over 220 units transfused and still going strong after five years.
BTW it took me about six months to become familiar with most of the jargon and medical terminology we use in this
WONDERFUL forum.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
)
47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).