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Old Fri Apr 11, 2014, 06:13 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
mdsSucks

Don't give up hope. I don't know much about the haploidentical transplants. For the mucositis, I was on Fentanyl and then had oxycodone when needed so that I could eat and use the restroom as needed. Not sure if your father is on both or not.

I wish him well.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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