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Old Thu May 13, 2010, 05:26 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Platelets

Hi Joytika,
You know platelets are very sensitive to a lot of drugs and food. I should never try unknown drugs like Ayurvedic medicine because my platelets have been low since dx (initial count 65, last count after 4 years 30). Here is a warning list for platelets:
http://www.pdsa.org/about-itp/warnings.html

The drug that has showed the best results in MDS is Vidaza with a little more than 50% of the patients responding. No one knows how the drug should be administrated to give the best results. One member of this forum is getting low dose Vidaza for 10 days in a 28 days cycle with good result.

One member of this forum (Kirby Stone) is getting Promacta with good result but the drug is expensive and not approved for MDS. The first trial in MDS patients will hopefully be reported in the fall 2010.

Hope your Dad will feel better with supportive therapy and perhaps some chemo!
Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal and Exjade for iron overload, Neupogen for low white blood cells, asymptomatic
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