Hi Eileen and Steve,
Thanks for the information. I'm still having my vidaza through IV and it is working much, much better for me. I've been having trouble with my stomach and have lost weight, but otherwise no problems. Unfortunately, though, my kidneys are acting up. I saw my kidney doc earlier in the week. He is concerned about my kidney function - I have PKD stage 4 kidney failure. He is running some more bloodwork and I'll talk with him again next week. Thanks for keeping me in your thoughs. It's so encouraging to hear about others successes. It'll be 2 years on Vidaza for me next month. Doc says the Vidaza is still keeping the disease in remission!!!!!!
Please continue to keep in touch.
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Kathy, 47, diagnosed with MDS IPSS Intermediate Risk, Refractory Anemia and Thrombocytopenia both secondary to MDS. 8/06-treatments include 14 shots Vidaza monthly, aeranesp, neulasta when needed also have polycystic kidney disease