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Old Sun Jan 24, 2016, 09:38 AM
Barb M Barb M is offline
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Join Date: May 2011
Location: Hendersonville, NC
Posts: 25
Clinical trials

Have you considered participating in a clinical trial? There was one that was using Revlimid and Promacta combined.

NIH also has a trial going on for Promacta, and I believe they are still recruiting. It did not work for me, but it did work Sally Cs husband and he has been transfusion independent for many years.

In clinical trials you don't pay for the drugs.

Go out to clinicaltrials.gov and search. Or contact NIH at barbara Weinstein at weinsbar@nhibi.nih.gov.
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