Thread: newly diagnosed
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Old Sat Nov 22, 2008, 11:18 PM
towncarlady towncarlady is offline
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Join Date: Nov 2008
Location: Gardendale, Alabama, USA
Posts: 36
Lack of knowledge about MDS even in the medical community

I had to see a physician, yesterday for sinus and ear infection. I had to explain to the doctor about my port, chemo, and sadly...I had to tell him what my disorder means.
I do have a good specialist. I am taking dacogen chemotherapy. This is supplemented with Aranesp and Neuprogen as needed. I also have had two series of blood transfusion and one series of platelete infusion.

I have found that it is extremely frustating in not knowing what to expect with virtually no way to have a firm treatment plan.

Best wishes!
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