Thread: newly diagnosed
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Old Sun Nov 23, 2008, 06:23 PM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
Quote:
Originally Posted by towncarlady View Post
I have found that it is extremely frustating in not knowing what to expect with virtually no way to have a firm treatment plan.

Best wishes!
I know exactly what you mean. I have been diagnosed since the early part of 2006, but unfortunately I have the slow moving type (MDS). All my numbers, red, white and platlets, drop one or two tenths every four months when I get my blood checked. Problem is, my numbers aren't low enough to trigger some form of treatment. So, I'm in the "watch and wait" mode, trust in my doctors and am forced to suffer with the constant tiredness most of the time. The slower it goes, the longer I live. Thank God I am retired and can rest most of the time, thanks to my wife, but it would be insane for me to wish it would hurry up and progress just so I can get some relief.
Hang in there and we will be talking to you.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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