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Not an expert...but
Hi there, I'm not an AA expert, but have untreatable moderate AA and would be an advocate for myself if a doctor was trying to refuse my wishes to have CMV- anything.
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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