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Old Wed Jul 20, 2011, 03:11 PM
Alice P Alice P is offline
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Join Date: Oct 2010
Location: Maryland
Posts: 28
Success with Wheatgrass

My husband has been receiving red blood cell transfusions for a year. His ferritin level in February was 1452. At the end of May it was up to 3890. He is unable to take Exjade because his MDS is high-risk and because his platelets are way below 50,000. Based on research done here on the forums and at mdsbeacon.com, he began taking wheatgrass pills in early June. He started with tablets but, due to the unpleasant taste, switched to 6-400 mg capsules of freeze-dried wheatgrass (the equivalent of 30 ml) per day. By June 23, his ferritin was down to 2613. Today, it is 451.5. These results are much better than expected, and we are amazed at how quickly the capsules worked. The cost works out to about $50/month.
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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