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Old Sun Sep 12, 2010, 10:58 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Debbie,

It sounds like you and Mike are in very good hands, and Mike is certainly fortunate to have your devoted care. Maybe it would be a better time for some lighter reading to help relieve the stess. Sometimes, I have to back off from all the medical information swirling around in my brain or I start feeling overwhelmed with the weight of the decisions.

I think it's going to feel like things are moving too fast no matter what the timing. You're doing better than us with the decision making. It took me six months to accept the idea that I needed to get the transplant, even with my doctors assuring me that sooner is better than later. My husband is still struggling with the idea, wondering if we should wait since the Vidaza is doing so well. I don't think it will ever seem like the right time. But we have caring, experienced oncologists and excellent facilities, and the time comes when we just have to move forward and accept that what we are doing is right, no looking back or second-guessing ourselves or our physicians. Of course, we continue to monitor and ask questions but we have faith in what we're doing.

Please keep us posted. It is a wonderful, supportive group here.

Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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