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Hi Karen
Sorry I missed this post until now.
As much as I want to stay on top of things I have not looked at the links. You are right about having to back off sometimes otherwise we would certainly go nuts. I did find an article about elevated Ferritin levels this afternoon and I'll post it later in I hope an appropriate thread.
I think the decision making process was helped along by outside influences who thought it was worth the risk - it is still very scary, there are happy endings and not so happy ending. You are using your time wisely in speaking with a variety of centers and sharing what you learned for others to read. Unfortunately all that information can also be confusing for you.
Will try and post as we move forward and may the Vidaza continue to work,
Debbie
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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