Wed Jun 8, 2011, 10:20 PM
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Member
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
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Any chance the lack of budesonide could have triggered an anti-platelet antibody reaction like ITP?
Laura, I am so sorry you are having such a frustrating time getting things figured out and I think it's awful you're having to orchestrate this all by yourself. I'm not impressed with your team at Mayo and am holding onto high hopes at Dana Farber.
Absolute best of luck there.
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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