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Laura, I am of no help other than to give you hugs. I cannot imagine the frustration you must feel right now, and from your sig you've been dealing with this for a long time now. We all hate the not knowing part, and adding that the "it's not my problem" response from your doctors is truly awful.
My prayers are with you, I hope you get some answers soon.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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