Hi everyone
I've been creating an on-going photo essay of my experiences with MDS.
You can follow it here:
http://citizenofthatotherplace.blogspot.com/
My goal is to create an artistic document of the rather bizzare experience of being a young adult going through MDS while still maintaining a fairly normal (i.e. quite hectic) life. It's the rather odd moments that creep into the day-to-day routine that give me pause (carrying a bag full of Neupogen shots on the bus home, having lunch...while also having a blood transfusion), so I've begun to photograph them.
I have been keeping it to myself as a personal project, but have decided to post it here for others to see and welcome you to visit it in the future as I will continue to update it. Hopefully at some point this artistic project can evolve into something that can raise awareness about this disease we all face. Any thoughts or advice are very welcome.
Cheers