|
myleofibrosis
Hi Richie,
What specific questions do you have? My father has MDS with primary Myleofibrosis overlap. Jak 2 positive. My father was just dx this Oct. His myleofibrosis is in the early stages, so they are not treating it right now. They are focusing more on the MDS right now.
MD Anderson is doing clinical trials for MDS and Myleofibrosis. Do a google on MD Anderson MDS/MPN primary myleofibrosis and you can get some good information. Do you have any chromosomal anomalies like the Jak 2 mutation?
How are your blood counts, do you have spleen enlargement? I can help you look up information. It is a lot to understand and I am still learning too. I hope this helps you.
Sincerely,
Mary
__________________
Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
|