thanks for all the responses
just feeling supported helps a lot. i just feel like i'm losing my marbles sometimes.
i went to emory to see dr. langston as requested by my doctor. they did a second bmb there. still didnt give me much information or explanations. the one thing she did say was that i needed a transplant but she wouldnt do one because i have 2 young children and who would take care of them while i recovered. so it just kinda seemed like ATG was delaying the inevitable. they were just trying to hold off until my children were older. and who is she to make that decision anyway? i have a husband and family that would jump in. and no matter how many times i tried to call her to ask questions, she never called back. i feel like this whole situation has been flubbed at every opportunity.
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Kimberly; AA patient; diagnosed 10/11; ATG 01/12 with cyclosporine
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