Thread: help?
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Old Tue Mar 20, 2012, 12:12 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
When I did a search on her name it appears her interest is in bone marrow transplant. You need a doctor who can help you manage your current issues now. It doesn't appear she is interested in doing that and your existing doctor doesn't seem capable. Check out Neil's suggestion. You or your husband can call them. You don't need to rely on your current doctor.

You can also contact NIH directly. I don't have the contact info but there are others who have been to NIH for treatment and can help you.

You really do have to advocate for yourself. Your husband and family can help you navigate this.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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