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Old Thu Oct 30, 2014, 09:18 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
MissDaisy - I had chronic idiopathic neutropenia for 6-7 years before being diagnosed with MDS so it's certainly worth setting up a sheet and monitoring your trends. Have been tracking my key results on a spreadsheet which averages each year's results since diagnosed with MDS, and find it very useful. If I'd done it earlier I might have picked up the downward spiral sooner.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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