View Single Post
  #4  
Old Thu Jan 31, 2008, 08:23 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
It sounds like you are absorbing all the information you can, as quickly as you can, and that's just the right thing to be doing. You are Lillie's best advocates, and part of the decision-making team.

A practical tip: it is wise to go to appointments with a written list of questions so you don't forget any of them while talking with the doctor. I hope you are both going to the appointment tomorrow so one of you can take notes. My wife and I always use that system.

I hope you'll hear details about the diagnosis, treatment choices, Lillie's current condition, and that you won't be shy about asking where Lillie can get the best possible care. You are lucky to have two hospitals with pediatric hematology specialists. They are only about 10 miles apart, right? Don't worry that the doctors will be offended if you plan to get a second opinion. No good physician will mind if you confirm a diagnosis or treatment recommendation, and the best of them welcome it because everyone wants what is best for Lillie. If they can share the bone marrow biopsy results, that would avoid needing another BMB.

You might ask Lillie ahead of time what she would like to know, so you can be sure to ask on her behalf. Dealing with aplastic anemia is frightening for everyone, and so is fear of the unknown. Kids often don't have the same concerns we adults do. Maybe she'll want to know more about what it means for going to school than about the treatments.

Please keep us posted.
Reply With Quote