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Old Fri Oct 29, 2010, 10:14 AM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Wink Greg-

Congrats on getting onto the Campath trial. I did it March of 2009.I have been transfusion free for 1.5 years now. Yes, my counts did go down first. And, yes, my transfussions were even closer together for a while afterwards, but my transfusions stopped altogether 3 months following the end of the trial, and by 6 months, my counts were good enough! I remain low on all 3 counts, but good enough for me to live a normal life. I play lots of tennis, (singles), even with my hemoglobin in the high 9's or anywhere in the 9's for that matter. My body just adjusted.

I hope it works as well for you as it did for me. Just be patient afterwards. It is hard, but for me, has been worth the wait.

Feel free to e-mail directly with any questions you may have.
lzieske@verizon.net

Best of luck!
Lisa
__________________
Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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