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Old Sat Dec 21, 2013, 12:59 AM
Sue H. Sue H. is offline
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Join Date: Dec 2013
Location: Switzerland
Posts: 19
Thanks Neil.
In answer to previous question - Yes, they do bone marrow biopsies at frequent intervals to monitor for any changes there- last one in August - next one due Jan. At present my husband visits hospital once a month and they take blood and analyse to monitor. Can't recall exact ANC count before Revolade (Promacta) but was out of critical range at that time (ie where infection a big risk) and now one year on is at lower end of normal range. My husband still has big fluctuations in energy levels but is generally feeling so much better than a year ago before Revolade.
As I mentioned before, seems not a lot of long -term experience with this med. so all somewhat experimental but so far we have seen encouraging results. NIH seems to have the most experience using Promacta so probably best to contact them.
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