[redslw]

Hello,
Like many others, I was in complete shock when he got the diagnosis. He started showing symptoms 2 years ago, he had just been diagnosed with Lupus, so naturally I thought his tiredness was due to that condition. (he also has Type 1 diabetes.) I've done so much research but I'm still confused.

The dr. in PA has started him on Dacogen. (1st treatment was middle July). He is RAEB 1 and has the ASLX gene mutation, which I know puts him in the high risk group.
Like many others, I am trying to do everything I can for him - but am met with resistance and impatience. He raises his voice with me frequently, but that's OK. I know he is upset.
He is only 58 years old and my only sibling. (both of my parents are deceased).

I guess I'm just looking for support here. Does anyone live in the Northern VA area? I would really like him to go to Johns Hopkins as they are a center of excellence and was wondering if anyone has been seen there. The dr. seems to think a stem cell transplant is not feasible, and I do not agree!
I am at work now but will try and check in later.