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Welcome edslw,
It's good to see you taking an active role in your Brother's life, I'm lucky to have 5 siblings (both my parents have also passed away), and when I was diagnosed (also high risk), first thing my Brothers & Sister did was get tested for an HLA match... For you it's only a matter of a cheek swab, hopefully when they did his BMB they tested it for HLA markers...
I too just started Dacogen a few weeks ago, and hopefully the two rounds I will receive will knock down my blasts to between 0-2%, which will be optimal for my BM transplant (BMT); not sure why your brother wouldn't be a candidate for BMT if you happened to be a match?...
I'm sure it's harder to get details second hand, but hopefully you will be able to lend your brother guidance and support...
God bless you both...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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