[redslw]

My brother had his BMB at Genoptix as well. He has a diagnosis of RAEB 1 with a score of 1.5 which I know is not too good (intermediate). However, it does state that "a clincially significant mutation is detected in the ASXL1 gene. The presence of this mutation is associated with an overall survival rate similar to that of patients in the next highest IPSS risk category". This means that he is high risk MDS, correct? I try not to freak but the survival rate is really low.

He is going to the dr. again today for his blood results, crossing my fingers. He will probably have the 2nd treatment of Dacogen after labor day.
Thanks for all of the kind words. This site gives me hope!