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Old Mon Jun 25, 2007, 07:10 PM
floridagirl floridagirl is offline
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Join Date: Jun 2007
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Hi everyone:
My name is Linda and a friend of mine's 10 year old daughter has recently been dxed with PNH or Aplastic Anemia (Dr.'s are not sure and from what I have read, they go hand and hand with treatment).
My question is for pediatrics, who seems to be the best in this field?
I have read alot about Dr. Neil Young at NIH, Dr. Robert Brodsky at Johns Hopkins and Dr. Ware at St Judes.
Dr Brodsky has a very interesting view on the use of cytoxan.
Can anyone share your opinion with us?

Thank you in advance and my heart goes out to each and every one of you because in the short time I have learned about this disease, it seems to be extremely rare and research is just now getting to be helpful (such as Soliris).

Any thought and stories would be helpful!
Best wishes and thank you,
Linda
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