Thread: New Member - Need Advice - two children with AA
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Old Fri Aug 15, 2008, 01:22 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Hi Marilin,

I cannot even imagine what you are going through at this point. This is so, so, rare to have two children with SAA. Have your doctors looked for common threads like genetic testing, toxic environmental exposures, shortened telomeres, etc? Has there been an unusally high rate of AA or blood disorders in your area? Hopefully, your docs will consult with NIH, Dr. Neil Young regarding your situation.

On the cylco taper, check this link on AA.

http://forums.marrowforums.org/showthread.php?t=559

Also, you may want to post your question in the AA section of this forum. With 9K platelets, I doubt that playing sports is doable.

I hope things turn around soon.

Marlene
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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