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Old Sat Aug 16, 2008, 11:50 AM
Wendy Beltrami Wendy Beltrami is offline
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Join Date: Aug 2006
Posts: 269
Marilin-

YES YES YES, I echo everything Sandra said. There is surely something else going on here. You didn't mention where you are located but you should definitely get a second opinion. Fanconi or dyskeratosis congenita or something environmental has got to be considered here.

If you post what city you are in, I'm sure this group can recommend a center of excellence near you.

Wendy/mom to Grant now age 16
dx 12/4/98 AA
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