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New to forum
Hello everyone. I'm new to this forum, but hoping to obtain a better idea of what is down the road. My spouse was diagnosed, finally, in early 2013 with Raeb1. He was referred for bmt work up about 2 months later. As he would require a non family donor he chose not to move forward with that course. He has under gone vidaza, and cyclosporine treatment with no real change in his counts(all extremely low). He just had his first transfusion of rbc with minimal change. He is now beginning treatment with revlimid following the discovery of an asxl1 mutation. I am a bit concerned, as this treatment appears to reduce counts before improvement. Has anyone experienced treatment with this medications, or know anything about this mutation? From what I have found, it doesn't sound good, and I'm beginning to wonder just what we're up against.
Thanks
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