Welcome, Renee. Please know that Brian isn't alone. We've met a number of PRCA patients and their spouses at Marrowforums and at conferences sponsored by the Aplastic Anemia & MDS International Foundation. Some of them have been fighting pure red cell aplasia for many years. You'll find many stories here about transfusions, PICC lines, hospitalizations, iron overload, and other experiences you've shared, including families who don't quite understand what's happening to you.
Among active forum members I know that
triumphe64 and
Lbrown often talk about their PRCA. Look for their posts as you read threads of interest.
Given Brian's allergic reaction to prednisone last time, do they have suggestions on how to avoid a similar reaction if it makes sense for him to take it again?