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Thanks for update
I have PRCA ... I typically get 2 pints per week on 3000-3500mg per day Exjade to control Iron at 1500. trying to maintain my hemo at 80 (8.0).
I have had periodic positive reactions to prednisone at 50mg/day but no other drug and only temporary ... for a week or two.
I am going to try a new cocktail now. Did Dr. M set you up with something?
Only small reaction to IVIG and no reaction to cyclosporine 6 months. Cyclophosphamide 3 months or Rituxin 3 weeks. The last two were taken with prednisone.
Please keep me posted and I will do the same.
Good luck,
Terry
Victoria, BC Canada
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I was diagnosed with PRCA June 2009. I am 60 and healthy except for weekly blood transfusions and now iron overload. On Exjade. Have been treated with antibodies, Prednisone, Cyclosporine & Cyclophosphamide. Would like to share with others.
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